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2012 Childhood Cancer Action Day

Registration Closes Next Friday – Sign Up TODAY!

Registration for thus year’s Childhood Cancer Action Day is open through Friday, May 4, 2012 so if you are planning to attend and have not yet signed up, make sure you do so soon!

CureSearch for Children’s Cancer, a member of the Alliance for Childhood Cancer, is participating in this year’s Childhood Cancer Action Day in Washington, DC, June 4-5, 2012 and registration is open for just a short time longer!

We hope you will join us for a day of issues and advocacy training and followed by a day of pre-arranged Capitol Hill visits with Congressional representatives and their staff so that members of the childhood cancer community – parents, children, and others – have the opportunity to visit Capitol Hill and advocate for important childhood cancer issues currently before Congress.

Monday, June 4, 2012 (lunch will be provided for all attendees)
12:00 PM About Capitol Hill – An Orientation for First-Time Attendees
1:00 PM Issues Training:

  • Building Support for the Creating Hope Act (H.R. 3059/S. 606)
  • Addressing the Drug Shortage Crisis
  • Ensuring Proper Reauthorization of the Pediatric Research Equity Act (PREA)/Best Pharmaceuticals for Children Act (BPCA)
  • Building support for the Pediatric, Adolescent, and Young Adult Cancer Survivorship Research and Quality of Life Act
  • Encouraging new House Membership to Join the Congressional Childhood Cancer Caucus
3:00 PM Advocate Training: How to Conduct Visits with Congressional Offices
6:00 PM Reception
Tuesday, June 5, 2012
7:30 AM Breakfast
9:00 AM Depart for Capitol Hill
10:00 AM – 3:00 PM Visits with Congressional Offices

When you register, you will be signed up to attend the training, scheduled for Hill visits, and have a room reserved at the Hamilton Crown Plaza in Washington, DC, for the night of June 4 at a room rate of $259 per night. If you do not need a hotel room, there is an option to note that during registration. Please note that transportation to/from Washington DC is the responsibility of those attending.

Registrations will be accepted on a first come first served basis so sign up today to reserve your spot. Visit http://www.allianceforchildhoodcancer.org/events.

On behalf of CureSearch for Children’s Cancer and the Alliance for Childhood Cancer, I look forward to seeing you in Washington, DC in June.

If you have any questions, please contact:

Erica Neufeld
Vice President, Communications and Advocacy
(240) 235-2201
Erica.Neufeld@CureSearch.org

Founded in 2001, the Alliance for Childhood Cancer is a forum of national patient advocacy groups, and medical and scientific organizations. These organizations meet regularly in Washington DC to share ideas and concerns and work collaboratively to advance policies leading to improved research, public education, and diagnosis, treatment, supportive care and survivorship for children and adolescents with cancer.

Members of the Alliance for Childhood Cancer include:

American Academy of Pediatrics
American Cancer Society
American Childhood Cancer Organization
American Pediatric Surgical Association
American Psychological Association
American Society for Radiation Oncology
American Society of Clinical Oncology
American Society of Pediatric Hematology/Oncology
Association of Pediatric Hematology-Oncology Nurses
Association of Pediatric Oncology Social Workers
B+ Foundation
Cancer Support Community
Chai Lifeline
Children’s Brain Tumor Foundation
Children’s Cause for Cancer Advocacy
Children’s Oncology Group
CureSearch for Children’s Cancer
Lance Armstrong Foundation
Leukemia & Lymphoma Society
National Children’s Cancer Society
National Coalition for Cancer Survivorship
Patient Advocate Foundation
Pediatric Brain Tumor Foundation
Sarcoma Foundation of America
Society of Pediatric Psychology
St. Baldrick’s Foundation


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